about the carrier testing. I will try to update when I hear some. Not much else going on here. I am joining Weight Watchers on Thursday. I just can't seem to lose anymore weight. :( Wish me luck!
Theresa, did you hear anything? My Mom had a muscle biopsy (that is how I was diagnosed with Myotubular Myopathy) to see if she was a carrier. Also, they did blood work and we are involved in a study at the Begg's lab. I hope to learn something. Is this what you are doing for Kyan? Is it the same type of testing? Good luck with that. Kris.
SAHM to 2 kids, college student, Scrapbook Ebay store owner, mom to a son with HF Autism & Severe Hemophilia A, scrapbooker, extreme couponer, daytrader, & an Army wife!
1 comment:
Theresa, did you hear anything? My Mom had a muscle biopsy (that is how I was diagnosed with Myotubular Myopathy) to see if she was a carrier. Also, they did blood work and we are involved in a study at the Begg's lab. I hope to learn something. Is this what you are doing for Kyan? Is it the same type of testing? Good luck with that. Kris.
Post a Comment