Theresa, did you hear anything? My Mom had a muscle biopsy (that is how I was diagnosed with Myotubular Myopathy) to see if she was a carrier. Also, they did blood work and we are involved in a study at the Begg's lab. I hope to learn something. Is this what you are doing for Kyan? Is it the same type of testing? Good luck with that. Kris.
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